It’s November again, and it’s time for my daughter’s third-year review. Echocardiogram, electrocardiogram, liver function, kidney function… He held her little hand and ran around the crowded hospital, registering, making appointments, checking, and checking the results. Each of them had to be done three or four times. Three years ago at this time, she was still a baby less than 6 months old, but she suffered unimaginable torture and suffered from a disease that I had never heard of. The incidence of this disease has been increasing in recent years, and it mostly affects children under 5 years old, with a higher proportion of boys than girls. The key is that because little is known about this disease, some parents delay treatment due to errors in judgment, and some doctors miss the best opportunity for treatment because of limited knowledge and skills, causing irreparable consequences for their children\’s health. This disease is Kawasaki disease. Although the incidence of Kawasaki disease is highest at the turn of spring and summer, my daughter got the disease in winter. The medical community has yet to determine the cause of this disease, and there is no effective means of prevention. I just want to write down my experience to let more mothers know – if the child has a high fever and develops symptoms of Kawasaki disease, he must be treated in time, the sooner the better, because it can cause serious heart damage to the child! The first time she had a fever, she was shot. Not even 6 months old, her daughter had a fever. Many people say that when a child has a fever for the first time, he or she is more likely to have a rash. That morning, her body temperature was always 37℃+. As a new mother, I was still very nervous when my child had a fever for the first time. Every time I took her temperature, I would communicate with mothers I knew well in the group and heard how they dealt with emergencies in young children. Rash. Starting in the evening, the temperature gradually increased. Only a mother would know the changes in her child. The slight redness in the whites of the child\’s eyes did not escape my eyes. Again, I would like to ask mothers, can acute rash in young children cause eye discomfort? The answer I got was that I didn’t think there would be any problem with my eyes. At this time, my daughter was relatively quiet and judged that her mental state was fine. However, at night, my daughter started to have a high fever, and physical cooling had little effect, so she had to use antipyretics. The method I learned before was to alternately use Motrin and Tylenol, and I survived until the next day. Kawasaki? Get hospitalized as soon as possible! Early the next morning, I discovered that my daughter had a rash on her right calf, her lips were also a little red, she was crying severely, and her mental state was very bad. After taking antipyretics, my body temperature still hovers at 39°C+. It is said that the results of a 24-hour blood test for high fever are more accurate. In the morning, we were worried that there would be too many people in the tertiary hospital, so we chose to go to the Maternal and Child Health Hospital for a blood test first. When I saw the doctor, he told me that the child had a fever and his eyes were red and bloodshot. I asked the doctor what was causing the red rash on the child\’s legs. The doctor looked at it and said it might be eczema. After the blood test results came out, the doctor was shocked: \”Why are the white blood cells so high? It\’s more than 20,000. Go to the central hospital quickly, go to the best hospital in the city.\” It\’s more than 20,000. I don\’t know what unit it is measured in, but the doctor\’s reaction The whole family was immediately panicked. Holding my daughter with red bloodshot eyes, I thought about 10,000 guesses and prayed 10,000 times that my child would be fine. I was admitted to the Department of Pediatrics at the Central Hospital for emergency rash. I rushed into the clinic desperately and showed the doctor the test results from the Maternity and Children\’s Hospital. The doctor immediately asked if the child\’s eyes were red. Is there a rash on the limbs? hairHow long does it take to burn? After answering a series of questions, the doctor wrote \”Kawasaki disease\” on the diagnosis book, followed by a question mark – \”Suspected Kawasaki, get hospitalized as soon as possible!!!\” Then, the doctor specially called the inpatient department and arranged for hospitalization as soon as possible. I rushed out of the clinic with my daughter in my arms. I asked where the inpatient department was all the way, but I couldn\’t tell the right side from the left. After hearing the first sentence, I turned left, so I quickly ran forward with my baby in my arms. When I reached the left turn, I hurriedly asked about the next step. How to go. Because I have never heard of it, I just race against time. The most difficult night was that I thought that after three years, I would have forgotten about this experience. However, every time I thought about the details, I started sobbing and stopped typing several times. To this day, whenever I see the word \”Kawasaki\”, I feel a little jealous. Who knows what kind of torture this name, which is the same as hot pot seasoning, has caused our family to suffer! I don’t want to recall this experience anymore, but I still want to use the platform of Yan Han’s mother to let more parents know about this disease. After being admitted to the hospital, my daughter had a high fever, and her temperature was above 39.5°C every time she was taken. In the afternoon, during the consultation, the resident doctor not only checked for redness in the eyes and rash on the limbs, but also checked whether the buttocks were red and whether there was any reaction to the BCG vaccine – both of which my daughter showed. The doctor also carefully measured whether there was any peeling at the end of the fingers, but my daughter did not show any such symptoms. Then, the doctor prescribed many laboratory tests. The blood test of a baby who is a month old requires blood to be collected from the femoral artery. Two adults are pressing a baby who is already in poor health but has to cry loudly out of fear. One needle fails to hit the right side and they switch to the other side. Six tubes of blood were taken from the child who was less than 6 months old. Every needle pricks my heart and bleeds. There is no exaggeration at all, this is the most real feeling I had at that time. The doctor asked us to take X-rays to see if there is inflammation in the lungs. While waiting in line, I finally had the chance to pull out my phone and find out what Kawasaki disease was. Unknowingly, what I entered into the search bar was: Will children die from Kawasaki disease? The diagnosis has not yet been confirmed, and the doctor has said nothing about the condition or consequences. This question was what I was most afraid of but wanted to know most at the time. People are always so contradictory. To confirm whether it is Kawasaki disease, you have to look specifically at the results of the echocardiogram. There was no color ultrasound doctor on duty that night, so I had to wait another night. X-ray of the lungs showed a small shadow. The doctor said it could also be a lung infection. Touching the child\’s little face, I kept saying: My baby will not get that bad disease, no, no… In the evening, I had a high fever again, and I had no choice but to get an antipyretic injection. The child, who has been in a bad state, keeps crying and crying, and her voice has become hoarse. The only thing I can comfort her is breast milk. Cry for a while, come over and hold her for a while, hold her for a while, and continue to cry… How uncomfortable, how scared, and helpless it must be. When she was less than 6 months old, she spoke hoarsely: Mom, mom, mom… One night, she cried and called her mom until she was tired and fell asleep. The first time I heard a child call me mom was in such a situation. It was this sound of \”Mom\” that made me realize that even a person like me who can burst into tears even watching soap operas should not cry in front of my daughter at this time. Only by being strong can I give her the bestA great relief. On the morning of the third day after the diagnosis, what exactly is Kawasaki disease, I finally waited until I could do an echocardiogram. As a result, the heart\’s coronary arteries dilate. The last life-saving straw was also bent. It\’s definitely Kawasaki disease. Kawasaki disease was first discovered by a Japanese man named Tomisaku Kawasaki. It is named after him and its scientific name is pediatric mucocutaneous lymph node syndrome. It is a systemic vasculitis that most directly affects the heart. However, to confirm whether it is Kawasaki disease, at least five conditions must be met. 1. High fever for more than 5 days. As a new mother, the child had a fever for one day and observed red blood streaks in the conjunctiva, so we immediately took him for a blood test. In other words, we have already started treatment before the fever reaches 5 days. I still don\’t know whether this is right or wrong. However, our clinical child is still suffering from fever after being treated in the village and county for 10 days, and a coronary aneurysm has appeared in his heart. This can only be said to be a misunderstanding. 2. Bilateral conjunctival congestion. My daughter had a fever for one day. She should be in the acute stage. The congestive conjunctiva was really red the next day. I only remember that I searched for information to see if this disease would cause eye damage. to harm. Both theory and fact have proven that Kawasaki disease does not affect the eyes. 3. Red lips and bayberry tongue. I always thought that the red lips were caused by high fever. When I was admitted to the hospital the next afternoon, I found marks similar to vertical stripes on the child\’s lips. Later I learned that this was also a symptom of confirmed Kawasaki disease. 4. Rash on limbs: The rash on the right leg was mistaken for eczema by the doctor at the Women’s and Children’s Hospital, and he was skeptical at the time. My daughter has a large red rash on her calves. Anyone who has ever been a mother knows this. How could it be eczema? ! 5. Swelling of cervical lymph nodes is also included in the scope of examination during echocardiography, and my daughter does have symptoms. 6. Heart complications: About a quarter of young children will suffer from heart complications due to Kawasaki disease, which is still a high proportion. Coronary artery dilation is common and may lead to myocarditis, endocarditis, and in severe cases, coronary artery aneurysm. If an aneurysm is accompanied by blood clots or ruptures, the consequences can be disastrous. There are also some symptoms that can be regarded as auxiliary judgment. Each child\’s performance is different. For example, my daughter will have redness and swelling around the anus and the site of BCG vaccination. Some cases have also shown symptoms such as joint pain. Critically ill? It was just a green plastic rope. After the diagnosis, I listened to the attending doctor introduce the treatment plan. The doctor said that in addition to not meeting the condition of high fever for more than 5 days, both the accompanying symptoms and the cardiac ultrasound results could confirm that my daughter had Kawasaki disease. After discussing this condition with the attending physician, I felt that there was no need to wait. Now that the diagnosis was confirmed, it could be treated. I feel like I can\’t stand it any longer, and I just hope that my daughter can get better as soon as possible. However, I still have doubts about this decision because I don’t know how to interpret what happened next. The main treatment plan for Kawasaki disease is to inject intravenous globulin and take high-dose aspirin based on body weight to reduce the damage to the coronary arteries caused by inflammation. Before treatment, various informed consent forms need to be signed. Looking at so many risks written in black and white, it is obviousI didn\’t dare to write, but I wanted to get treatment as soon as possible. Every time a guardian signed, my pen trembled and I wrote extremely heavy. Later, a green ring-shaped plastic rope was placed on the armrest of my daughter\’s hospital bed, while the two adjacent beds did not. I asked the nurse, what does this mean? The nurse said, critical illness sign. Critically ill. Critically ill. I just thought this was the hospital\’s way of avoiding risks, and I firmly believed that my daughter would get better soon. When the baby was given an injection, he had to look for areas with thick blood vessels on his head, and the needle always skipped. Coupled with the various liquids used to treat diarrhea and other illnesses, the child\’s head was really riddled with holes. Fortunately, with the help of aspirin, after the first injection of gamma globulin into the body, my daughter\’s body temperature slowly dropped and she only had a low fever. My hanging heart dropped along with my daughter\’s body temperature. After the second gamma globulin injection, my daughter\’s body temperature finally returned to normal. My daughter, who had never tasted anything other than breast milk, tasted medicine for the first time. Aspirin and dipyridamole, another anticoagulant drug, were crushed and literally poured into the child\’s mouth every day. What\’s more, it will be like this every day in the next few months. Fortunately, the fever has subsided, and the tortured family can finally feel relieved. When we are extremely scared, people will not cry. It seems that they just refuse to let us relax. Another wave of fear soon comes. Half a day after her fever subsided, my daughter had a high fever again at night. The doctor said that it was possible that the child was not sensitive to gamma globulin and that he would need to observe further. This means that the most effective treatments may not be effective for my daughter. Suddenly, I felt like my ears were blocked by something, and there was a \”buzzing\” sound. My heart felt as if it was weightless during a rapid descent, and I sat slumped on the edge of the bed. Grandma also turned pale, holding on to the bed, her arms trembling. When people are extremely scared, they don\’t cry. I clearly remember the look in my grandma\’s eyes at that time. She saw a glimmer of hope, but was ruthlessly declared a failure. At the same time, she was worried that it would cause greater mental pressure on me, so she kept holding back from crying. Later, I heard my grandma describe that at that time, she was already incontinent… and her pants were all wet. How painful it must be for her not to reveal more in front of me. The next morning, my daughter\’s fever subsided and she started to have a runny nose and cough. It seems that it is not insensitivity to gamma globulin. Originally, there were more sick children in the hospital in winter, so the possibility of cross-infection could not be ruled out. My mood is like riding a roller coaster. It feels like I have experienced all the joys, sorrows, joys, and joys of my life in these few days. After being hospitalized for half a month, I don’t know whether it was another complication of Kawasaki disease or a real cross-infection. My daughter had severe diarrhea, cough, and runny nose. Fortunately, the fever has gone away, I am in good spirits, and the child can occasionally smile. Kawasaki disease lasts for one week, one month, three months, one year… In the next five years, we will do a series of follow-up examinations every year to see how the child is recovering. When the heart was checked again one month later, only the beginning of the right coronary artery was a little wide. At the three-month review, everything returned to normal. After three months of reexamination, my daughter\’s platelet count remained high. Although she stopped taking aspirin, she continued to take dipyridamole. Moreover, she had to go to the hospital for a finger prick every half month for dynamic observation. I don’t know whether treatment was given before the fever lasted for 5 days, or whether the child hadI drink less water and tend to sweat more, but my platelet count is always very high. This is also the point where I mentioned earlier that I had doubts about rushing for treatment at that time. However, when the child\’s platelet count returned to 400, I stopped the medication. The rest, I just trust her. When reviewed a year later, the results were normal. Kawasaki disease is a self-limiting disease. The fever may subside after about 2 weeks, or may heal on its own. The most terrifying thing is not the disease itself, but the complications it causes. Early symptomatic treatment can reduce the damage to the child\’s heart and coronary arteries. The vast majority of cases can recover after treatment. Even if it is a coronary aneurysm, with good doctor\’s treatment, it will be significantly improved or completely recovered after one year. However, antibiotic treatment of Kawasaki disease is ineffective, which is why our young patient in the clinic was given antibiotics for more than ten days in the village and county, but his fever failed to go away. Kawasaki disease is not contagious, but vaccination must be postponed for at least six months after recovery. Anyway, it was postponed. We postponed the injection of live vaccines for a while until half a year later. If all mothers knew the things I wrote down, they wouldn’t be as panicked and helpless as I was when faced with their children’s emergencies, right? Therefore, I was lucky that I was diagnosed with elevated white blood cells without even queuing up at the maternal and child hospital. I was lucky that I met a doctor who quickly judged the condition at the city hospital. I was lucky that my child was hospitalized in time and received timely treatment. As I finish writing this article, I have a pile of tissues next to me to wipe my nose and tears. Looking at my sleeping daughter and holding her little hand, there is no happier moment than this. Because, my daughter, no matter how many ups and downs there are in life, we can still walk hand in hand through decades of overlapping lives, and that is enough.